Kristen Valdes reported her daughter Bailey was born with a significant autoimmune situation, but that it took seven years and her daughter’s around-dying knowledge to get the appropriate prognosis.
Bailey virtually died just after she was approved medication for a sinus infection that was adverse to her autoimmune ailment. The virtually lethal party could have been averted had interoperability permitted doctors to see the whole health care file of her daughter’s treatment, Valdes reported.
Valdes advocated for seven years for an acceptable prognosis. Alongside the way, there have been breakdowns in interaction, plenty of misdiagnoses, pricey recurring methods and diagnoses based on confined and siloed overall health info.
Sitting down in a specialist’s EHR the day a pediatrician approved a sinus medication contraindicated to Bailey’s certain disease, was the appropriate prognosis for Bailey’s autoimmune situation. The specialist’s EHR file had no connectivity to the pediatrician’s business office.
“She virtually died.